• MKD Lalitha Meegoda Senior Lecturer, B.Sc. Nursing Programme, Department of Allied Health Sciences
  • Sharaine Fernando Professor in Physiology, Department of Physiology, University of Sri Jayewardenepura, Sri Lanka
  • S Sivayogan Emeritus Professor, University of Sri Jayewardenepura, Sri Lanka
  • NOS Atulomah Professor of Health Promotion, Babcock University, Nigeria




Family Care Givers, Non-Pharmacological Approach, Cancer Palliative Care

Abstract [English]

Background: Palliative care for pain relief and management of other distressing symptoms of cancer patients specially through non-pharmacological approach by family care givers (FCGs) improves the quality of life of patients. Preparedness of FCGs for this role needs to be explored.

Methodology: Descriptive qualitative design was adopted to explore the FCGs readiness on providing cancer palliative care for their cancer survivors. Focus Group Discussions were conducted in public sector, private sector and cancer care institutions which are managed by the Cancer Society in the Colombo area until data saturation was achieved between September 2011 to January 2012.

Results: Most of the FCGs were females and the mean (SD) age was 39(±10) years. The average educational level of the FCGs/domiciliary care providers was at primary level. Thematic analysis of their data on the readiness to provide cancer PC emerged four key themes; readiness in providing care, need relaxation, need psychosocial support and inadequate knowledge.

Conclusion: FCGs had the readiness to provide care for their patients amidst challenges they face during the time of care giving. Family care givers were of the view that having knowledge and experience as an FCG will facilitate in continuing to care effectively.


Download data is not yet available.


American Cancer Society. (2010) Cancer facts & figures Atlanta, GA: American Cancer Society; 2010 [cited 2011 Mar 15]. Available from:

http://www.cancer.org/Research/CancerFactsFigures/CancerFactsFigures/cancer-facts-and-figures-2010.Chilton, 2003

Azvolinsky, A. (2015). Eight signs death is imminent in advanced cancer patients. Network, home of the journal Oncology.

Cancer News Center, "Programme of action for cancer therapy. [Accessed 23, May 2008]," 2008.

De Silva, B.S.S., Rolls, C. and Campbell, M. (2008) An ethnography study of nurses: Cancer pain management in Sri Lanka. Thesis Submitted to Australian Catholic University, Australia http://dlibrary.acu.edu.au/digitaltheses/public/adt-acuvp227.14012010/02whole.pdf.

Docherty, A., Worcestershire, PCT, Owens, A. Asadi-Lari, M., Petchey, R. Williams, J. and Carter, Y. (2008). Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Journal of Palliative Medicine SAGE Publications, Los Angeles, London, New Delhi and Singapore. 1–19 DOI: https://doi.org/10.1177/0269216307085343

Given B. A., Sherwood P., and Given C. W., "Support for caregivers of cancer patients: Transition after active treatment," American Association for Cancer Research, vol. 20, pp. 2015-2021, 2011. View at Google Scholar | View at Publisher DOI: https://doi.org/10.1158/1055-9965.EPI-11-0611

Grant, M., Elk, R., Ferrell, B., Morrison, R. S., and. Gunten, C. F, "Current status of palliative care-clinical implementation, education and research," Cancer Journal for Clinicians, vol. 59, pp. 327–335, 2009. View at Google Scholar DOI: https://doi.org/10.3322/caac.20032

Kristjanson et al., 2008) education: Australian & Canadian challenges," Journal of Contemporary Nurse, vol. 6, p. 950, 2008.

Kulkarni, P., Kulkarni, P, Ghooi, R, Bhatwadekar M, Thatte N. and Anavkar, V. "Stress among care givers: The impact of nursing a relative with cancer," Indian Journal of Palliative Care, vol. 20, pp. 31-39, 2014. View at Google Scholar | View at Publisher DOI: https://doi.org/10.4103/0973-1075.125554

Mansky, P.J., and Wallerstedt, D.B. (2006). Complementary Medicine in Palliative Care and Cancer Symptom Management. Cancer Journal, 12(5), 425-431. DOI: https://doi.org/10.1097/00130404-200609000-00011

Meegoda MKDL & Fernando DMS & Sivayogan S & Atulomah, NOS & Marasinghe, RB, 2018. "Domiciliary Care Providers Views on Provision of Palliative Care for their Cancer Patients," Cancers Review ISSN(e): 2408-9273, Conscientia Beam, Asian Medical Journals. vol. 4(1), pages 1-7. DOI: 10.18488/journal.95.2018.41.1.7

Meegoda L, Fernando S, Sivayogan S, Atulomah NO, Jayasiri J. Perceived palliative care needs of cancer patients, nurses and domiciliary care providers at a national cancer referral facility, Sri Lanka. Journal of Pioneer Medical Sciences. 2015; 5(2):46-50

Michael, N., O’Callaghan, C. and Hiscock, N. (2013). Cancer Caregivers Advocate a Patient- and Family-Centered Approach to Advance Care Planning. Journal of Pain and Symptom Management 47 (6) Pages, 1064–1077.

Ministry of Health. 2015, Cancer incidence data, Sri Lanka. National Cancer Control Programme.

Ministry of Health. (2012) Annual Health Bulletin Sri Lanka: Medical Statistics Unit.

National Cancer Institute (2013). Family care givers in Cancer. U.S. Department of Health Homan Services, USA Government.

Nimmaanrat, S., Prechawai, C. and Phungrassami, T. (2010) Cancer pain and its management: A survey on interns knowledge, attitudes and barriers. Palliative care Research and Treatment.4. 11-17. Available at: http://www.la-pres.com. DOI: https://doi.org/10.1177/117822421000400001

Reinhard, S.C., Given, B., Petlick, N.H. and Bemis,A. (2008). Supporting Family Caregivers in Providing Care. Chapter 14. Patient safety and quality; An evidence-based handbook for nurses by Hughes, April 2008.

Scherbring, M. "Effect of caregiver perception of preparedness on burden in an oncology population," Oncology Nurses Forum, vol. 29, pp. E70–E76, 2002. View at Google Scholar | View at Publisher DOI: https://doi.org/10.1188/02.ONF.E70-E76

Schneider, N., Mitchell, G.K., Murray, S.A. (2010). Palliative care in urgent need of recognition and development in general practice: The examples of Germany. BMC Fam Pract. 11:66. [PMC free article] [PubMed]Singh, D. P. (2010). Quality life in Cancer patients receiving palliative care. Indian journal of palliative care. 16(1). p.36-43.

Schulz, R. and Beach, S.R. Caregiving as a risk factor for mortality: The caregiver health effects study. JAMA.1999;282:2215–9. [PubMed] DOI: https://doi.org/10.1001/jama.282.23.2215

Van Manen M. (2001). Researching lived Experience: Human Science for An Action Sensitive Pedagogy. The University of Western Ontario London.

World Health Organization (WHO), Cancer control knowledge into action. WHO Library cataloguing in publication data. 2007. Available at:





How to Cite

Meegoda, M. L., Fernando, S., Sivayogan, S., & Atulomah, N. (2019). EXPLORINGTHE PREPAREDNESS OF FAMILY CARE GIVERS TO PROVIDE CANCER PALLIATIVE CARE. International Journal of Research -GRANTHAALAYAH, 7(6), 18–26. https://doi.org/10.29121/granthaalayah.v7.i6.2019.734